Friday, July 3, 2009
Thursday, July 2, 2009
Thankfully, Alex had an easier day today. He had neuro-psych testing in the morning, and an echocardiogram of his heart in the afternoon. He also managed to collect the beads he earned yesterday for all he went through then! It was awful, 4 straight hours of vision testing and photos and then no break--he was whisked away to surgery.
The Family-Life Specialist (aka "the bead lady" or Miss Laura) was also giving out tickets to all the kids for baseball games, so we got a pair of Minnesota Twins tickets for this Sunday! Th
We actually get 3 days in a row with no appointment
Mik
Getting ready to start #5 of 6 IV infusions he gets for today, thanks again so much for all the prayers and well wishes!! They mean so much to us!!!
Wednesday, July 1, 2009
On top of it all, his 2nd catheter was found to be incorrectly placed (by about 5 inches) and had also developed an infection...
We are naturally upset about these operations, seems like such a lot to put the little guy thru only to find that it's incorrectly placed...I hope at least this time they got it right...
But what a trooper Alex is!!! After having gone thru surgery today and all the tests he had to endure, he still was up for hitting the bouncy house in the basement of the Ronald McDonald House (picture). What an amazing little guy!! Plus, he's very excited that on Friday he has a turn to take care of the house dog, Jerry, and he's looking forward to that responsibil
Kath is just amazing, she's handling all this with strength and commitment, simply a super mom. I love her with all my heart.
Stay strong, buddy, and don't let the speed bumps knock you off the road!!!
Dadd